At The Dietologist, we see many individuals living with endometriosis in our virtual clinic every week, navigating chronic pain, digestive symptoms, and fertility struggles.
One of the most common questions we hear is: Can changing my diet really make a difference to my endometriosis symptoms?
With more people exploring nutrition as a tool to manage symptoms, a new study published in JAMA Network Open takes a closer look. We’ve broken down the findings of this large international survey that you have probably seen hit the news and share our thoughts as dietitians with expertise in endometriosis nutrition over the past decade or so.
Endometriosis ,or endo for short, is a chronic inflammatory condition where tissue similar to the uterine lining grows outside the uterus, most commonly in the pelvic area. Estrogen seems to fuel these lesions. Endometriosis can negatively impact egg quality, block the fallopian tubes, and interfere with embryo implantation.
While there is no known cure for endometriosis, laparoscopic surgery can help remove adhesions, cysts and nodules, especially for those trying to conceive. If you suspect endometriosis, speak to your GP about a referral to advanced trained endometriosis surgeon.
These symptoms don’t just affect fertility, they often disrupt work, relationships and mental health too.
To investigate which dietary changes and supplements are being used by individuals with endometriosis, and how effective they are for pain management. This represents the largest international survey to date examining dietary and supplement interventions for endometriosis pain management.
While the study is exciting, some limitations mean we can’t take these findings as gospel:
1. Self-Reported Diets Are Tricky
What does “dairy-free” mean to someone who still eats cheese daily? Gluten might be cut from bread, but not from sauces or processed snacks. Without clinical oversight, we can’t assess true compliance to the labelled diet on the survey.
2. Pain Recalled Retrospectively
Pain ratings were based on memory, not real-time tracking, which introduces recall bias and likely affects the reliability of the data.
3. Not Everyone Improved
Almost half the participants didn’t see a benefit. That’s a huge red flag against making blanket dietary recommendations.
4. Could Exacerbate Self-Initiated Dietary Changes & Associated Risks
Based on the data we have, we know that increasingly people with endometriosis feel the pressures of changing their diet to manage their condition which is leading to higher rates of disordered eating & clinical eating disorders in this patient population. These exclusionary dietary approaches such as gluten-free, dairy-free, sugar-free and low FODMAP diets, whilst may be reported to enhance endo symptom management. Understandably, it may be more harmful to an individual’s relationship with food and their body than the potential benefit in endometriosis symptom improvement (Panariello et al., 2023).
This study reinforces our core belief and knowing from supporting hundreds of people living with endometriosis: there is no one-size-fits-all endometriosis diet.
Instead of cutting out entire food groups and hoping for the best, we recommend working with an experienced dietitian who can:
Learn more about when and why to see a dietitian for endometriosis here.
If you’re curious about what changes might help, here are a few evidence-informed strategies we often discuss with our endo clients:
Fibre helps your body excrete excess oestrogen, key for endo management. Focus on:
People living with endometriosis tend to have higher levels of oxidative stress. Boost your antioxidant intake by focusing on:
Research has shown vitamin C and E supplementation may help lower inflammatory markers and pain, but we always recommend a food-first approach.
Omega-3 fats are anti-inflammatory for endometriosis and also support egg health.
Prioritise:
Limit:
A simple swap to extra virgin olive oil is a great first step to support healthier dietary fats.
Endometriosis affects 1 in 7 women of child-bearing age and is a major cause of the heartbreaking experience of delayed conception.
While surgery remains the gold-standard management for endometriosis, growing evidence suggests that what’s on your plate matters too.
If you want individualised support managing your endo pain and other symptoms, reach out and start working with one of our experienced fertility dietitians today.